Although he was diagnosed with epilepsy at 17, Libby Boyce said she had never heard of SUDEP prior to her son’s death. But she feels the kinship with other mothers who have lost a child to SUDEP has given her life meaning.
“Mother’s Day is a cherished day for mothers across the nation. For others, it can be a day of reflection for those who have a challenging relationship with their children; or a day of regret for those who never had children; or it can be a day of sheer grief for those who have lost a child.”
The letter, she wrote, was also her way of paying “tribute to all of the SUDEP mom warriors who live with this horrific burden.”
Libby Boyce said she refuses to believe her son died in vain.
“Epilepsy can be a lethal medical condition, yet very few people think of epilepsy as potentially life-threatening,” she wrote. “It is something that has for far too long been swept under the carpet and I hope that sharing Cameron’s story and the stories of other SUDEP mom warriors will be the catalyst for change.”